In April 2016, I was diagnosed with Young Onset Parkinson’s Disease. For over three years now, I have been unable to write, often struggle with a utensil, and tend to stagger over my own feet. I live with a constant fear of the progression of an untreatable disease. A disease that has already rendered me unable to do certain things and struggle with other things. That’s the worst of it. But the worst of it pales in comparison to the positive in my life. The best of it is I have worked in the cycling industry for over 14 years, am the co-founder of the Rasputitsa Spring Classic, and I am completely surrounded by a force of people that not only support me but more importantly inspire me (Lyne Bessette headlining that list). With that, I have made it my personal goal to ride the 100b7 in October.
For me, this goal will take the perseverance and strength that I will need on a deeper level to navigate a debilitating future. In 2015, I rode a century and quit at mile 80 in tears. The tremor in my hand makes it hard for me to grip anything nonetheless a handlebar for hours, and the muscle vibration accompanying this difficulty causes shoulder pain. Yet, this ride for me will be a testimony that will and determination outweighs any physical forbearance.
I am truly honored that I was chosen as the butterfly of the 100b7. To me, that symbolizes one thing. Butterflies are known for their strength and ability to travel great distances despite their delicateness and fragility. If we live our lives remembering what we can do and not what we cannot, we learn to fly. Look forward to riding with all of you in October!Voir le site web